The results

Ever since Chloe was born she has had breathing issues. She needed really high levels of oxygen after she was born. So high we weren't even allowed to put our fingers through her humidicrib to touch her as she wouldn't have been able to cope with it.
Then at 6 weeks she got bronchiolitis, which is apparent;y not common so early on in a breastfed baby. She also had a stridor, so she had really really noisy breathing for 2 years. She then was diagnosed with asthma, that goes hand in hand with her allergies.

Since December last year health wise things have fallen apart for her. She has lost weight, stopped growing, been miserable. We introduced a new specialist to our lives last November, a respiratory specialist. He ordered a bronchoscopy and CT scan to be done of her lungs. The bronchoscopy is when they put a camera into her lungs to have a look .

So Thursday at 4.30 am we headed off to Brisbane. It was dark and cold. Chloe had been fasting since midnight and the rest of us had gobbled breakfast before she woke up and we didn't eat or drink in front of her till after the op. It is ultra traumatic to watch your child have an anaesthetic.

Anyway the results weren't great. Her lungs are full of mucous. In some parts the secretions are so thick they are like chewing gum. Her left lung has a partial collapse. She has bronchiectasis. That is widening of her airways. Basically saying lung damage. The plan. Intensive chest physio. New long term antibiotics. They will cost about $30 a week. Start immunoglobulins soon. Aim to hopefully prevent more damage. If not much improvement in 6 weeks, admission to hospital in Brisbane for 2 weeks for a "tune up". Gosh I hope that doesn't happen. Two little girls would be very sad having to be away from their best friend. Two grown ups also sad about it all.

So we are still a little numb...ok a whole lot numb. My head is spinning at the moment. We will be ok, I know that. We just need time to get our heads around it all.