She's sick again. She's cranky...really really cranky. And her trial of Intragam has finished. It had too, it's the rules of the blood bank and none of us want her to stop it, but she has too. They are expecting her to go back on it in a couple of months, in time for winter, and then she will be back on it for life.
We need to see her paed on Friday. And he quite possibly will put her in hospital for 2 weeks. And that means she will miss her first ever school excursion. And that sucks. A lot. I know in the grand scheme of things an excursion isn't a big deal. But it is for her who has so many not normal things in her life. For a short time it would be nice for her to be able to do all the things other kids do. To feel just like all her friends. She knows she's different. And at 6 different is not a great place to be. I really hope she gets better before Friday. There is probably more chance of us winning lotto than that happening.
Maybe there is an antibiotic we can use at home to stop hospital again.
I'm tired already and I wish for a little while she could just forget she was sick....
Wednesday, November 18, 2009
Tuesday, November 10, 2009
I wish she didn't have to
Our big girl is gorgeous. She has a lovely nature and people always always comment on her kindness, her gentle heart, her caring nature.
She at times isn't those things at home, but hey, none of us can be like that all of the time can we :)
She adores her little sister. At times, that little sister is really annoying...really really annoying and demanding and loud and sometimes mean.
Chloe has another infection. Quite a bad chest infection really. And Jess also has a cold. Jess gets a cold like other kids get, miserable, cranky and then better. The way Chloe never does. Never...ever...
Anyway...the girls were in the toyroom playing and Chloe was coughing coughing coughing. Jess says " I wish I could take your sickness Chloe and you could be better and I would be sick instead"
And it made me teary. She has such an amazing heart. And she loves her sister so much. And I wish she didn't have to think about the seriousness of Chloe's illness. And that she didn't have to know how damn hard it is to be in hospital long term. And that I wish she had no understanding of illness at all. I wish her biggest thought processes revolved around what book to read next, what Hannah song to sing next and what Christmas presents she will be getting soon.
And it doesn't, and it can't, and yes I know she is amazing..but I wish she didn't have to be.
She at times isn't those things at home, but hey, none of us can be like that all of the time can we :)
She adores her little sister. At times, that little sister is really annoying...really really annoying and demanding and loud and sometimes mean.
Chloe has another infection. Quite a bad chest infection really. And Jess also has a cold. Jess gets a cold like other kids get, miserable, cranky and then better. The way Chloe never does. Never...ever...
Anyway...the girls were in the toyroom playing and Chloe was coughing coughing coughing. Jess says " I wish I could take your sickness Chloe and you could be better and I would be sick instead"
And it made me teary. She has such an amazing heart. And she loves her sister so much. And I wish she didn't have to think about the seriousness of Chloe's illness. And that she didn't have to know how damn hard it is to be in hospital long term. And that I wish she had no understanding of illness at all. I wish her biggest thought processes revolved around what book to read next, what Hannah song to sing next and what Christmas presents she will be getting soon.
And it doesn't, and it can't, and yes I know she is amazing..but I wish she didn't have to be.
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