Friday, January 2, 2009

It did get worse

Never again will I say that was my worst day. There can be worse. We then experienced worse.

After that horrible Friday when the PICC line was placed, Chloe refused to weight bear on her leg. She said it hurt, a lot. She is not a whinger and so we all listened. Originally her paed was pleased as he wanted her to stay off her leg. By Sunday it was odd that she refused to walk...at all. So Monday came and it was off for an ultrasound to see what was going on. Jess was supposed to be at school and Greg at work, but it rained and Jess was very sad so they decided to come up and see us. Thank goodness Greg was there when all this happened. He kept me grounded and him being there meant we supported each other.
So off to the ultrasound Greg and Chloe went. When they returned Greg said"they think there is a clot" Our paed rang. The registrar came in. The NUM came in and said the PICC line is coming out now. So through her drip C had some magic medicine that made her all dopey and drunk and they removed the line. We were then on bedrest so as not to dislodge the clot and we would reultrasound the next day.
The Tuesday showed the clot was larger, in her groin, knee and calf. And we had to start anticogulants. Needles into her tummy twice a day. It was awful. So so awful. She hated it. Apparently they hurt. A lot. Their were nurses so upset by all of this. She is so so brave but my god it is so so unfair.
Lots of phone calls to Brisbane. Our paed was a legend with all he did. The nurses were amazing as well. I will never cease to be thankful for all the support they gave me as well as Chloe. They hated it as much as we did as they are a little besotted with our youngest daughter.
We went home and had to return for the needles. The NUM thought I should be taught to inject her at home, so as the disruption was less. I agreed. Some nurses, especially the ones who hadn't nursed Chloe, thought I shouldn't. That it would effect her relationship with me.
Kerry and I disagreed. Chloe is mature enough to know it had to be done by someone.
God it was awful though. I hated it, Greg hated it, Chloe hated it the most.

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