So we all know it is tiring to be in the situation we are. A child with a chronic illness is exausting. The continual reevaluation of what we are doing. The therapies. The dr's appointments. The medication regime. The dealing with dr's, teachers, receptionists, well knowing people, it is tiring. The sleepless nights when we listen to her breathe, when we see her breathing falter a little. The sleepless nights when I lie there worrying that we are doing the right thing. The fear that the next infection could be the one that puts her into PICU or worse.
But I know we are lucky. So so blessed actually. We get to experience all of this.
Most days walking the girls into school I pass a car that has a website address on it. It is the car of a teacher at school. They lost their little baby girl earlier this year to whooping cough. And I know they would give it all to be able to be looking after her on earth still. I am reminded every day that our stress and worry is nothing compared to the grief of parents who lose their children far too early. I know that their sleepless nights eclipse ours. I know that no matter what she is here and she is gorgeous and we are lucky. And the heartache we experience pales in comparison to the heartache of not being able to do this anymore. We are lucky.
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